Do Tarlov Cysts cause Pain?

What is a sacral Tarlov cyst?
  • A cyst is basically a bag of fluid.
  • A cyst is like a water balloon.
  • Sometimes at the sacral spine (the large bone at the back of the pelvis) there is a fluid collection known as a sacral Tarlov cyst.
  • I explain sacral Tarlov cysts by comparing the sacral spinal canal to a garden hose.
  • Have you ever seen a garden hose that gets worn down to the point where there is a bulge or out-pouching, where the wall of the hose has become worn and weak enough that the hose develops a bulge?
  • Now imagine that instead of a bulge filled with water from the garden hose, at the sacrum there is a bulge filled with spinal fluid from the spinal canal.
Do sacral Tarlov cysts cause pain or other symptoms?
  • Sacral Tarlov cysts are usually not symptomatic, but they can be.
  • Some dogmatic doctors will say that sacral Tarlov cysts are NEVER symptomatic, but I do not believe that is true.
  • Although they are USUALLY just an “incidental” finding that is noticed on MRI or CT scans, in some cases pressure from a Tarlov cyst may indeed cause symptoms.
Where do patients feel the symptoms from a sacral Tarlov cyst:
  1. Sacral pain (pain at the back of the pelvis)
  2. Pain down your leg or legs: If the Tarlov cyst causes pressure onto the upper sacral nerve roots, this may cause pain that down into one or both of your legs.
  3. Pain into your pelvis: If the Tarlov cyst causes pressure onto the lower sacral nerve roots, this may cause pain that travels into your pelvis.
    • If the sacral nerve roots that are involved include sacral nerves 2, 3, and 4, then the symptoms may travel in the distribution of the pudendal nerve, causing pain in the distribution of that nerve (pudendal neuropathy, or pudendal neuralgia).
    • Pudendal nerve pain is usually a burning pain into your genital region.
    • Pudendal nerve problems sometimes include genital numbness, instead of pain.
  4. Tailbone pain? There is one study of 9 patients in 2020 that reported that Tarlov cyst surgery gave partial relief of coccyx pain. See: https://tailbonedoctor.com/tarlov-cyst-surgery-may-relieve-coccyx-pain/
Patrick Foye, M.D.
Founder and Director at The Tailbone Pain Center
Tarlov Cyst info, Coccyx Pain, Tailbone Pain, Coccydynia, Patrick Foye MD
Tarlov Cyst info, Coccyx Pain, Tailbone Pain, Coccydynia, Patrick Foye MD

3 Different Injections for Tailbone Pain

Multiple different types of injections are done to decrease tailbone pain.

3 of the most common types of tailbone injections:
  1. Steroid injection: a steroid is an anti-inflammatory medication that can be placed at a site of inflammation, to decrease the inflammation and pain at that location.
  2. Sympathetic nerve block: Sometimes in addition to the musculoskeletal pain and inflammation there is a component of nerve pain. Performing an nerve block is when the doctor places a local anesthetic (such as lidocaine) onto specific nerves in order to temporarily shut them off. After a few hours when the nerves “wake up” again, the nerves may not be so hyper-sensitive and hyper-irritable. So the nerve pain can be dramatically decreased or even completely resolved.
  3. Nerve ablation (destruction): if none of the other injections are helping, then one option is to intentionally destroy/kill/deaden the nerves that are carrying pain from a specific site. If the nerves can not carry pain signals from your tailbone, then the pain signals will never be sent to your brain and your quality of life may be dramatically improved.
Sequence of Injections
  • Steroid injection: I typically start with a local steroid injection, ideally targeting the specific area that matches the individual patient’s diagnosis. For example,  if the pain seems to mainly be coming from a distal coccyx bone spur, then I would target that spot. If the pain seems to be coming mainly from a dislocated or unstable (hyper-mobile) joint then I would target that specific area. (This is why it is so important to have an accurate diagnosis first rather than just injecting without knowing where the pain is coming from.)
  • Sympathetic nerve block: Depending on the response to a local corticosteroid injection, I would consider a ganglion Impar sympathetic nerve block. Sometimes I will combine the steroid injection and the ganglion Impar sympathetic nerve block (the steroid helps treat the musculoskeletal pain/inflammation while the nerve block helps treat the nerve pain).
  • Nerve ablation (destruction): Most patients will get good relief from either the steroid injection or the sympathetic nerve block. For those who don’t, I consider nerve ablation.
  • Repeating injections: If any given injection gives great relief (in terms of the amount of relief and the duration of relief) then that same injection could be repeated if the pain comes back many months or years later.
Fluoroscopic guidance:
  • Improved relief: In general, these injections can be done under fluoroscopic guidance so that the physician can make sure the medication is placed in the location that is most likely to relieve your tailbone pain.
  • Decreased risks: Fluoroscopy also helps the physician to make sure that they do not accidentally inject the medication into an area that would cause complications or side effects.

There are also other types of injections done for tailbone pain, but the 3 noted above are the most common.

Please post below any thoughts, questions, or comments you have about tailbone injections for tailbone pain.

No Surgical Hardware for Tailbone Pain

Sometimes patients ask me whether tailbone pain (coccyx pain) can be treated by placing surgical hardware into or onto the tailbone to stabilize any instability of the tailbone.

At first consideration, this is a reasonable thought.

  1. Firstly, unstable joints of the tailbone are one of the most common causes of tailbone pain (and this diagnosis is very frequently missed if tailbone x-rays are not done while the patient is sitting down).
  2. Secondly, unstable joints and bones in other parts of the body are often treated by inserting a metal screw, pin, or rod, or by attaching a metal plate that spans across the unstable area in order to stabilize that location.

However, the tailbone is different than many other sites. There is no well-established surgical procedure to put hardware into or onto the coccyx to stabilize it. 

But there is ONE single case where a surgical pin was used:  

  • This was only tried in ONE single patient, in South Korea.
  • A 31 year-old woman slipped and fell onto her coccyx, causing anterior dislocation at the sacrococcygeal joint.
  • Surgeons put in a surgical pin:
    • they inserted a thin (2.4 mm diameter) wire/pin into the coccyx to treat the dislocation.
  • This surgery was performed VERY soon after the injury.
    • Specifically, it was done just eight hours after the tailbone injury.
    • So the surgery was done the VERY SAME DAY as the injury.
    • The VERY soon timing of the surgery raises multiple questions:
      • Would the patient’s pain have improved just as well without the surgery, just by normal, natural recovery?
      • What would be the criteria to justify doing surgery so soon, when data and clinical experience shows that MOST patients with tailbone injuries resolve over time WITHOUT surgery?
      • Would any similar surgery have any role in patients who did not have the surgery done on the same day as their injury?
  • Published: Joystick reduction and percutaneous pinning for an acutely anteriorly dislocated coccyx: a case report. Kim WY, et al. J Orthop Trauma. 2004.

 

Beware surgical cement

  • There was a single case report presented at a conference years ago about a doctor who injected some surgical cement into a patient’s coccyx region.
  • But I don’t think there was ever any follow-up after the conference in terms of how the eventual outcome was.
  • Also, I don’t think they ever published it as a medical journal article.
  • I did inherit one other/different patient who had undergone an injection of surgical cement and she reported being MUCH worse for having undergone the injection. It was sort of a mess, because now the cement blocked the areas where typical injections would be tried. Also, any surgical treatment was going to need to remove not only the focal area of the coccyx, but also was going to need to remove the extended, larger area of the cement.
If you have thoughts, comments, or experiences regarding surgical hardware at the coccyx, or regarding cement injections for tailbone pain… Please post your comments below! 
Regarding complications and side-effects from coccygectomy (surgical removal of the tailbone), please click on the links below:

 

Patrick Foye, M.D.

Founder and Director at The Tailbone Pain Center

Colonoscopy Causing Tailbone Pain (Coccyx Pain)

Colonoscopy is a medical procedure where a flexible tube is inserted into the anus and colon.

  • A camera on the front tip of the tubing allows the doctor to see the inside of your colon, within the large intestines.

Colonoscopy is generally considered to be a safe way of detecting abnormalities such as colon cancers.

However, any time that a medical instrument is inserted into a human body there is a risk of causing injury to the patient. I have seen multiple patients where the onset of their coccyx pain was immediately after colonoscopy. 

In 2008, I published in the American Journal of Physical Medicine and Rehabilitation a case report of tailbone pain due to colonoscopy:
  •  A woman underwent colonoscopy.
  • After the colonoscopy, when she awoke from sedation, she reported the new-onset of severe tailbone pain (coccyx pain, also called coccydynia or coccygodynia).
  • The coccydynia was felt to be have been caused by the colonoscopy, based on the positive imaging studies, the timing of the symptom onset, the lack of previous symptoms or injuries at that site, and the close proximity of the injured coccyx to the anal and rectal regions traversed by colonoscopy.
  • This was the first case ever documented in the medical literature where colonoscopy caused a patient to have tailbone pain.
  • (Reference: AJPMR 2008 Mar; 87 (3): S36)
  • Since then, I have seen and learned of a number of other patients whose tailbone pain either started after colonoscopy or whose tailbone pain was worsened by colonoscopy.
  • Conclusion: colonoscopy can now be added to the list of traumatic causes for tailbone pain.

It is not surprising that colonoscopy could cause tailbone pain.

  • The tailbone is very very close to the colon. The colon / large intestine is anatomically located immediately in front of the sacrum and coccyx, so it is possible that colonoscopy may cause potential trauma to the coccyx.
  • Pressure from the colonoscopy could push on the tailbone, especially if the tailbone anatomy is abnormal.
  • Probably the patients at highest risk for this are those whose tailbone is flexed too far forward, bringing it even closer to the colon.
  • It is also possible that pressure on the tailbone can happen AFTER the colonoscopy, while sitting in a hospital bed in recovery after the procedure.
  • Colonoscopy may cause or worsen tailbone pain.
  • And of course there are times where the coccyx pain is not related to the colonoscopy at all.
  • Regarding bowel-rectal-anal symptoms and coccyx pain, see: https://tailbonedoctor.com/tailbone-pain-and-bowel-problems/

Continue reading Colonoscopy Causing Tailbone Pain (Coccyx Pain)

What Type of Doctor treats Tailbone Pain?

People with tailbone pain (coccyx pain) sometimes wonder…

What type of doctor treats tailbone pain?

The answer probably depends on where you are within your spectrum of treatment…

  1. If you have mild tailbone pain of recent onset, probably your primary physician can handle this adequately by recommending a cushion and pain medications by mouth.
  2. If your tailbone pain has been present for more than a month, or if you are not getting enough relief from the initial treatment provided by your primary medical doctor, then you should see a doctor who specializes in pain management. Ideally it should be a pain physician who has experience in treating tailbone pain.
    • Pain management doctors can provide pain medications given by local injection.
    • Pain management physicians are usually subspecialists from the fields of either 1) Physical Medicine and Rehabilitation [PM&R], or 2) Anesthesiology.
  3. If you have pain throughout the pelvic floor, it may be very helpful to receive an evaluation and treatment from a pelvic floor physical therapist.
  4. If your pain has been present for more than two month, or if are not getting good relief from your local clinicians, you should consider seeing a doctor who specializes specifically in coccyx pain.
    • This way you can get sitting-versus-standing coccyx x-rays and other expert-level evaluations to find the cause of your pain and to provide the best available treatments.
  5. For patients who have not gotten adequate relief from medications by mouth or medications by local injection, then one consideration is surgical removal of the tailbone (coccygectomy). This is typically done by an orthopedic surgeon or specifically by a spine surgeon. Coccygectomy is necessary in less than 5% of people with tailbone pain.

Regardless of what type of doctor you are considering seeing, perhaps the most important question is whether or not the doctor has substantial experience and expertise in treating tailbone pain.

Here are 3 ways to tell if your doctor is experienced at evaluating and treating tailbone pain:

  1. Look at the website for the doctor or their medical practice. If the website fails to mention coccyx pain, tailbone pain, or coccydynia, then clearly the doctor does not consider that to be a significant part of their medical practice.
  2. Call the doctor’s office and ask the receptionist “Does Dr. _____ treat coccydynia?”  Coccydynia is the medical term for tailbone pain.  If the receptionist sounds confused, or needs you to spell or explain what coccydynia is, then clearly tailbone pain is not a common issue for patients treated in that practice. The receptionist’s job is to answer the phones all day for incoming patients and follow-up patients, and to book their appointments, hundreds of times per month. So if the receptionist has not heard of  coccydynia, or has to check with someone else to find out if that practice treats this condition, then you already know the answer that usually they do not.
  3. Ask the doctor’s receptionist whether their office provides seated coccyx x-rays (x-rays of the coccyx, done while you are sitting, since that is typically the most painful position for most people with tailbone pain). If the receptionist sounds confused, or needs you to explain what seated coccyx x-rays are, then clearly tailbone pain is not a common issue for patients treated in that practice.
  4. Asks the doctor, “How many patients with tailbone pain have you treated in the past month?” If the doctor is not regularly treating patients with your condition, then he or she will probably be less experienced at providing the optimal testing and treatment for this condition.

Patrick Foye, M.D.

Founder and Director at The Tailbone Pain Center

Pelvic Floor Physical Therapy and Tailbone Pain

  • As a rehab medicine physician, let me start by saying that in general… I am a big fan and a big advocate for physical therapy as a non-surgical approach to many musculoskeletal/pain disorders.
    • For pelvic floor pain and dysfunction, there are a growing number of physical therapists who specialize in treating pelvic floor pain.
    • A pelvic floor P.T. can often be extremely helpful with a variety of conditions including some forms of:
      • urinary incontinence,
      • pelvic floor sagging/prolapse,
      • vaginal muscle pain during sexual intercourse,
      • various pelvic floor muscle spasms, tightness, etc. (including pelvic floor muscle spasms that may occur as a guarding/reactive response because of tailbone pain),
      • and much more!
  • Having said that, when it comes to focal tailbone pain the benefit (or lack thereof) of any given treatment probably depends most on the underlying cause or condition. There are some tailbone conditions that I would NOT expect P.T. (or other attempts to do mobilization of the coccyx) to be particularly helpful for:
    • Bone Spurs:
      • If the tailbone pain is being caused by a focal bone spur (which commonly occurs at the lowest tip of the tailbone) and if it is NOT associated with any muscle/tendon pain within the pelvic floor, then P.T. would probably NOT be likely to provide substantial relief.
    • Recent bone fractures:
      • if the bones of the coccyx have recently been broken (fractured), then those bones may need relative rest and a chance for the fractures to heal. As with other body regions, aggressive physical therapy too soon after fracture would have the potential to delay fracture healing.
    • Unstable or excessively mobile tailbone joints:
      • If “coccyx mobilization” is the proposed treatment, then it makes sense to wonder when that might be helpful and when that might be harmful.
      • Mobilization (or “manipulation”) is done to increase the movement of a joint or body region that is felt to be “stuck” or “too stiff”.
      • At the tailbone, mobilization is done by the clinician inserting one or two of their fingers into the anus and rectum (in front of the coccyx) while the thumb is placed in back of the coccyx. Then the clinician attempts to move (mobilize) the tailbone.
      • However, if the tailbone is already moving too much (due to unstable joints causing excessive mobility) then mobilizing the tailbone might actually WORSEN the problem.
        • This is important since probably the MAJORITY of patients with tailbone pain have undiagnosed joint instability at the coccyx.
        • So this MAJORITY of patients would have a condition for which we would typically recommend AGAINST attempting additional mobilization.

 


In the comments section below, I would love to hear from:

  • Any pelvic floor physical therapists who have input on pelvic floor PT specifically for patients with tailbone pain. Feel free to agree, disagree, or just add additional perspectives and dialogue regarding this challenging area.
  • Any people with tailbone pain who have tried pelvic floor PT. What were the biggest benefits? What were the biggest limitations? Any other thoughts… ?

 


Pain and Pelvic Floor Prolapse after Coccygectomy (Tailbone Removal)

Coccygectomy is surgical removal of the tailbone (essentially amputating the tailbone).

There are not great long-term studies about long-term complications of having the tailbone removed.

The short-term risks include infection at the surgical site, especially in the first few weeks or months after the surgery.

  • Infection: In some studies up to 20% of patients need to have repeat/additional surgery to remove the infected tissue, and the infection rate is generally figured to be due to the tailbone being so close to the anus and therefore the surgical site really cannot be sterile the way that other body regions can be.
  • More info. on bone infections after coccygectomy.
  • More info. on drains and antibiotics after coccygectomy.

Longer-term risks include persistent pain and pelvic floor prolapse.

  • Persistent pain: unfortunately, although coccygectomy is usually effective at removing some of the patient’s tailbone pain, usually the relief is not complete. It is very common that some pain will persist.
  • Pelvic floor prolapse: Some of the pelvic floor muscle/tendon/ligaments do indeed attached to the coccyx, and certainly there have been case reports of people who have suffered from “pelvic floor prolapse” after coccygectomy, which is sagging of the pelvic floor.
Regarding complications and side-effects from coccygectomy (surgical removal of the tailbone), please click on the links below:

Patrick Foye, M.D.

Founder and Director at The Tailbone Pain Center

Tailbone (Coccyx) MRI: Viewing Your Own Computer CD

If you had an MRI done for your tailbone pain (coccyx pain, coccydynia) you should try to get a copy of the computer CD containing  your MRI images.

Ideally you should review the actual images with your treating physician (typically the physician who ordered the MRI). It’s a very bad sign about your  treating/ordering physician if they are not willing or able to review your tailbone MRI images with you.

But if the MRI facility gave the CD directly to you, you may be interested to check it out yourself, even prior to bringing it to your  doctor’s visit. Read below for tips on how to view your CD at home.

Here are some typical steps to open and view your MRI images on your own computer:

  • Typically when you load the computer CD in your computer the CD will open up and show a bunch of different files and folders.
  • If on your computer you have your folder display options set to “show details”, then it will show you not only the electronic file names for those files/folders but also the details about what types of files they are.
  • Usually there will only be one file that is classified as an “application” file.
  • Typically, if you click or double-click on that specific “application file” it will run the program that will show the images.
  • It may take a minute or two to load the program and bring up the program’s control panel.
  • Directions get trickier after that because every different MRI manufacturer has different software, so different ones use different control buttons for scrolling through the hundreds of images associated with a single MRI study.
    • For example, sometimes you need to double-click on a batch of images to display them.
    • Other programs require you to click on a batch of images and drag/drop them onto a display field.
    • Some programs will have you use the arrow buttons on your keyboard to advance from one image to the next, or from one group of images to the next.
    • Other programs will have you use the “page up” or “page down” button on your keyboard to do this.
    • Still others will require you to use your mouse to click on an icon up in the toolbar to do this.
  • Similarly, there will be control buttons to click on (or keyboard shortcuts) for your to look at further details of the images by making the image more or less bright, or adjusting the contrast up and down, or zooming in on an area of  question/concern. Again, the details for how to do this varies from manufacturer to manufacturer.
  • Take a photo: If you see something interesting or concerning on your computer screen, or anything that you just have a general question about, you may want to take a photo of it using your smartphone, so that you can show it to your doctor in case he/she has trouble opening the CD in their own office. When you are taking a smart phone/iPhone photo of your computer screen, you may want to turn off the lights in the room (to minimize reflection/glare).

Patrick Foye, M.D.

Founder and Director at The Tailbone Pain Center

Bone scans often FAIL to show tailbone cancer or coccyx injury

A “bone scan” is a test performed by the nuclear medicine part of a radiology center.

A “Nuclear Medicine Bone Scan” is generally considered to be very good for detecting bone destruction from things like bone cancer (malignancy), bone infection (osteomyelitis), or bone injuries (such as fractures).

If the bone scan is truly being done to look for tailbone pain (coccyx pain), you must make sure that the bone scan actually includes the tailbone (coccyx)!

  • Many doctors are not aware that a standard Nuclear Medicine Bone Scan does NOT include views of the tailbone.
  • In the standard way that a Nuclear Medicine Bone Scan is done, the images are done with a view from the front or the back, but not with a view from the side. Those standard front or back images unfortunately cause the view of the tailbone and lower sacrum to be BLOCKED (obstructed) by the nuclear medicine material in the urinary bladder at the front of the pelvis.
  • (Bone scans use nuclear medicine material that lights up bony fractures, tumors, etc. This nuclear medicine material is given intravenously through the IV, then filtered by the kidneys and it collects in the urine within the urinary bladder at the front of the pelvis, where it typically blocks the view of the tailbone. It’s sort of like the nuclear material in the urinary bladder causes a “shadow” blocking out the ability to see what is going on at the tailbone. )
  • Thus, the standard technique for a Nuclear Medicine Bone Scan will show a clear picture of ESSENTIALLY the entire body… EXCEPT for the coccyx and lower sacrum.
  • Thus, the doctor may order the Nuclear Medicine Bone Scan to check for a cancer at the sacrum or coccyx, but then the test will show essentially the entire body EXCEPT for the area that the patient and doctor are interested in!!
  • I have unfortunately seen MANY patients who previously had a bone scan done were tailbone problems, only to be told that it was normal, and then many months later when they come for a consult with me we realize that the bone scan never even included any views showing the tailbone at all!! It’s absolutely crazy, but it happens very often.
  • The result is that the doctor and patient think that a Nuclear Medicine Bone Scan has done a good job of making sure there was no cancer or infection at the coccyx, when in reality the bone scan failed to look at that area. So maybe there actually is a cancer or infection there but the Nuclear Medicine Bone Scan missed it.
  • The way to avoid this problem is for the doctor to explicitly order the Nuclear Medicine Bone Scan to include images of the pelvis/sacrum/coccyx FROM THE SIDE VIEW, instead of just the front and back views.
  • The medical phrase for this side view is a “lateral view”.
  • The doctor and patient can explicitly request that the radiology center include side-views (lateral views).
  • If you already had a Nuclear Medicine Bone Scan done, then there are some important steps to take…
  • Obtain a paper copy of the Nuclear Medicine Bone Scan  official, typed radiology report. Read the report and confirm whether the radiologist actually commented explicitly on the appearance of the tailbone. Look for the words coccyx, coccygeal, or sacrococcygeal. If the report fails to specifically mention the appearance of the coccyx, coccygeal, or sacrococcygeal areas, then there is a high likelihood that those areas were not properly seen or included in the images that were done.
  • Also obtain an electronic copy of the actual bone scan images (typically on a computer CD) and ask your treating physician to specifically point to the tailbone on the images. Often, the doctor will be surprised to realize that the tailbone was not included at all! 

Patrick Foye, M.D.

Founder and Director at The Tailbone Pain Center

Motocross Riding Career Ended due to Tailbone Pain (Coccyx Pain)

In the news…

Ryan Villopoto recently retired from his motocross (motorcycle racing) career due to an April 2015 crash in Italy that reportedly caused multiple tailbone fractures (broken bones of the coccyx) and low back injuries of the lumbar spine.

Villopoto is only 26 years old, but was already an accomplished motorcycle racer, including six-time Motocross champion, four-time Supercross champ, and winner in the 250 class in 2007 at Spring Creek.

News Source:  postbulletin.com

https://upload.wikimedia.org/wikipedia/commons/0/0d/Ryan_Villopoto_MXoN_2008.jpg

Motocross champion Ryan Villopoto. Source: “Ryan Villopoto MXoN 2008” by Mark – Flickr: Red Bull FIM Motocross of Nations 2008. Licensed under CC BY 2.0 via Wikimedia Commons – https://commons.wikimedia.org/wiki/File:Ryan_Villopoto_MXoN_2008.jpg#/media/File:Ryan_Villopoto_MXoN_2008.jpg

 

Patrick Foye, M.D.

Founder and Director at The Tailbone Pain Center

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